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And they took us out of the scanning room, into a more quiet room while they typed up the report. The Royal College of Obstetricians and Gynaecologists (RCOG) have produced a report on Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales (May 2010). And as, and as soon as I saw the pictures of the scan, having had two normal pregnancies, even I could see that there was a marked contrast between this pregnancy and the pictures that I'd had previously. Except for the persistent, nagging doubts. I couldn't really believe what they were saying. It will take only 2 minutes to fill in. Very occasionally this second scan cannot be completed, for example because: In this case you will not be offered another screening scan but you will offered an all over physical examination for your baby after birth. When I told him what had happened, he refused to believe anything was wrong and said he'd sort it out when he came home. b>Bad news at 20 week scan. Tommys is a registered charity in England and Wales (1060508) and Scotland (SC039280). And, sometimes, I wish I had invited my whole family into the hospital room to see him. To comment on this thread you need to create a Mumsnet account. I just feel very unlucky. The first result, which tells you if the baby has Down's syndrome, is ready in three days, but the other chromosomal problems cannot be eliminated for up to three weeks. And, for a few hours, I'm convinced I've made a terrible mistake. No, you couldn't see there was anything wrong. If you are offered further tests, you will be given more information about them so that you can decide whether or not you want to have them. Immediately I knew what decision we should take. She didn't say at the time that it was a major problem or that it was something to watch out for. But here I was, minutes later, lying down, waiting. These opinions do not represent the opinions of Tommys and are not advice from Tommy's. For instance a couple who knew their baby was 'on the small size' were told he was fine at the 18-20 week scan, but discovered at 32 weeks that he had microcephaly. And before they gave me any of the results she asked a colleague to come and told me she wanted to check something, with a colleague, and by then I was getting very concerned because I'd never had that happen before. For five months my body had known there was something wrong, yet I had felt fantastic. And that was a terrible moment to be sort of hanging on, waiting. No sort of questions about, 'Do you want to know whether it's a boy or a girl?' . If this happens, you will be offered one further scan by 23 weeks of pregnancy. We strongly advise readers not to take drugs that are not prescribed by your qualified healthcare provider. It was far too much power; neither of us wanted it. I was another one who did get bad news at the 20 week scan. We had amnio and then spent a week in absoute anguish waiting for the outcome which was no trisomies. Can you remember that minute. Some hospitals do offer earlier anomaly scans of the baby, but they will not show as much detail as scans performed between 18 and 20weeks. Laura miscarried her twin babies in February. I was saving my child from pain and suffering. It's been a heartbreaking nightmare. Mm-hm. Within two days I was waiting in my local EPU unit for further tests. An hour passed and I started to panic. The screen may be directly facing them or at an angle. Instead, I had to raise a glass of water to my mouth, take a swig and swallow the tablet. In most cases the scan will show that your baby appears to be developing as expected but sometimes a condition is found or suspected. From losing my dad to his battle with cancer, to then having to face another battle with cancer and my mum; thankfully she pulled though. This image shows a baby's face and hands at 20 weeks, and gives you an idea of what you'll be able to see at this scan. Again the legs were quite twisted, they said that the baby's sternum was very short - things weren't in proportion you know - the head was quite large, the neck was very thick, there wasn't really like a neck as such it was just things were kind of - there were lots of things that obviously the consultant could see that we weren't aware of. Eventually, the doctor finished the scan and said that some of the baby's measurements were very small. Thanks girls, it's amazing how protected our babies are in there isn't it?! And of course some other measurements she needed to take like the width of the skull, which she couldn't take because the fetus was in the wrong position. Well send you a link to a feedback form. Like many things, the theory is very different from the reality. chances of bad news at 20 week scan mumsnet. If an abnormality is confirmed or suspected, referral is usually required, although some obvious major fetal abnormalities, such as anencephaly, may not require a second opinion (this should be decided by local guidelines). 20-week ultrasound (anomaly scan) - BabyCenter Australia Scans cannot find all conditions. Some stories I hear are amazing! The weeks since that day have been very weird. Has anyone been told the sex incorrectly at their 20 week scan? Eventually, the midwife said to us very sweetly, "I think we should deliver the baby now." Living in this world must be unbearable for them. The baby was very, very small. I was sat on the sofa working, my son was at nursery and my partner was in the bath. So we'd gone through the Down's syndrome or worse scare, we'd had conversations about what we would do, if it was confirmed that it was Down's syndrome or another syndrome, another sort of chromosome abnormality. I was booked back in to discuss management options, if nothing had happened. As though I went power mad for a week, killing my innocent unborn child, and now I am tainted for ever. There was cause for concern. This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. So that just left the talipes. The 18-20 week antenatal scan and further tests. Two days, after on Christmas Eve, (my 12 week date) I had more blood tests. Public Health England (PHE) created this information on behalf of the NHS. As soon as we arrived, we were shown to this little room. Some things can be seen more clearly than others. When I see a child with Down's syndrome, I have a tremendous need to explain myself and apologise a million times over. But the closeness has remained after the drama has died down. Has anyone been told the wrong sex at 20 week scan? The first words I said were: "If there's anything wrong then it's my fault", I had been working 70, nearly 80 hours the previous weeks and pushed myself hard. Eventually she got the measurements she wanted. So we decided to book an early 10 week private scan. The consultant showed us the letter with our result on and, yes, there were the words "Down's syndrome". But I still didn't want to be the one who stopped this baby's chance to live. Sam reassured me, but the guilt had hit me along with the feeling that our world was falling apart. You've had a scan, you've had the blood tests, you've been good. I'd had the scan in the scanning room, I can't remember what they call it now, it's silly, it's gone from my head. Next most likely (but actually in the minority) they identify something which whilst not 100% healthy is treatable. And it's, I can't remember exactly what it was now, it's about where the brain is supposed to form. And my husband, we never got to sit next to each other in the consulting room, my husband was across the room from me, and I was sat next to the consultant, and we were laughing and joking with him about, you know, the home delivery, and everything was going to be, 'Are you still on for the home delivery?' Looked exactly like our two year old as a baby. But he was not sure. And again, you know, you read all the books and it tells you 'this is the diagnostics', but after a while you don't hear that inside your head any more No, no, no, I'm fine - because everything's perfect. The clinic advised a follow up scan the week after, to check on progress and to see what to do next. I let out an animal scream and [wife] kind of leapt onto me on the bed. I know I could have delivered him in a quarter of the time, but I couldn't bear the thought of him leaving me. I thought I was going to burst into tears. You could see her face, and the major aspect that was, that was the indication of what was wrong was the thickening at the back of the neck in this instance, which, when you're looking at a fetus is, you know, sort of half a centimetre thicker or not is completely immaterial to me, and would look like a completely normal neck, but from the point of view of the consultant was severely abnormal. Soon, the doctor came and inserted the tablets that would induce labour. The 18 -20 week fetal anomaly scan is a watershed in most pregnancies because for the majority of women it will be the last time they are scanned before giving birth. Some of the other conditions, such as heart defects, are more difficult to see. It is as though our pain means we've earned the right to be taken more seriously. It was sick. The hormone levels had dropped, but they wanted to scan me again. My wife turned the screen away from her. There were also two spots on his heart, which were "soft markers" for Down's syndrome. (See 'Resources'). And I assumed my partner would feel the same. Some people we talked to had not had a 18-20-week scan, either because their babies' abnormalities had been detected by earlier . And then all of a sudden, I was still laughing and we were all very upbeat, and then suddenly, he suddenly said, but I was still, still laughing, and he said to me, 'Oh, there might be a problem, there might be a problem with the, I think this baby has hydrocephalus'. It is a noise that will stay with me for ever. If one of the conditions is found or suspected, the sonographer may ask for a second opinion from another member of staff. So it was, there was very, very little movement from the baby because I remembered first time round by that stage, you know, that the baby was quite big and it moved around a lot at a later scan. I popped out from work, telling my boss I'd be back in half an hour. We didn't feel we could tell anyone what was happening. We left the hospital a couple of hours later. Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might have a problem. 10/03/2021 16:13, @Cormoransjacket The contractions started very quickly and within an hour my waters had broken. My son's congenital heart defect was detected at the 20 week scan and he had 2 other markers, no . Just doing it. And I am slowly coming to terms with what has happened. Registered office: Nicholas House, 3 Laurence Pountney Hill, London, EC4R 0BB. It is essential that all practitioners performing fetal anomaly ultrasound screening should be trained to communicate abnormal findings to women, as such information is likely to have significant emotional impact. Then I picked myself up. I tried to keep positive. 1. Read full disclaimer. After preparing myself to face having to take the medication. 26/09/2019 22:46. We, I was with my mum, and they scanned and found choroid plexus cysts on the brain, which is just a mark, it's a marker on the brain, it's a, what they call a 'soft marker'. No one else felt him kick. I didn't want to be convincing him to agree with me. The milk came and stayed for what seemed like for ever. Within it are a number of recommendations for the communication of findings from ultrasounds. I think at that time she had come to terms better with the fact that this baby was going to be terminated, and I don't think I was quite there. Again, we weren't understood. Did you, how did that scan make you feel? And they, sort of two of them were looking at the scan machine and then they sort of switched everything off and said, 'Oh, I think we have, might have a problem'. We had the baby cremated. And even at that early stage it was beginning to sink in that there was something really not right. We'd just spent some time away on a, on a summer holiday and come back expecting to have this scan and be told, 'All fine. And you know, we were laughing and joking. Many parents were shocked by findings from the 20-week and later scans. In some very serious rare cases, where no treatment is possible, the baby will die soon after it is born or during pregnancy. I was disgusted - disgusted that such a tablet existed, let alone that I should have to take it. I had hope that the little bumps inside me were fighting just as much as I was to stay with me. Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might have a problem. See you in -. The week that followed was an agonising wait. The decision to terminate the pregnancy was my partner's and mine. And shortly after that, that scan we'd finished and the consultant leant back and said, 'I'm afraid we have some problems here'. The people who did know what was going on seemed far too sure that we were doing the right thing, that there was really no choice to be made. I couldn't have the added responsibility for changing his mind. 2022. We were denying him his life. My heart goes out to you OP. My belly was growing and I was feeling great. I felt crushed, I wanted him to at least acknowledge what had been found already. To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: psi@nationalarchives.gov.uk. Cardiac surgery can do some amazing things. Nice people shouldn't hear about what we'd done. To help us improve GOV.UK, wed like to know more about your visit today. You get extra care and monitoring as appropriate and baby is proactively treated. And that was extraordinary to see the detail that that could offer. We needed closure, to allow us to grieve properly. The baby was kicking so hard that I began to believe him. I noticed the box of tissues on the table. So I suppose from that aspect, mind you having not been told that or sitting there, I wouldn't have thought necessarily that was odd. So carried on with the plans, and, you know, planning for the, another baby to come along and then we went for a 20- week scan which is obviously the big one and very exciting, seeing all the arms and legs and once again everything was going fine, 'Look here's the baby, here's the length of baby'. So I was, they couldn't actually finish the scan then, the baby was moving around too much, so they couldn't scan the heart and the stomach. She just said, 'It's a bit short, it needs to be checked' again basically. We left for home feeling completely numb. Do you have any thoughts about that? This publication is available at https://www.gov.uk/government/publications/screening-tests-for-you-and-your-baby/11-physical-conditions-20-week-scan. No, we really didn't, with hindsight we probably should have, but not at all, it never occurred to us to be worried about it. You will be able to discuss this with your midwife or consultant. However, a few hours later there was another shift change. And it's like, I really wanted to see it and I didn't, and it was it was very mixed. So he was about two weeks smaller than what he should have been. Again, no notes can have been written down because the midwife asked the same question. Picture every packed football staduim up and down the country - all healthy pregnancies and births. So when that happened to us I really didn't worry, I thought, you know, it was literally the baby was in awkward position, they couldn't see the heart and that was why. So we decided that, to have the scan and we went along I think early in the week for that, and spent quite a lot of time with the consultant after that. I travelled to work that day feeling amazing. So we gave up and said we'd arrange the funeral ourselves. Find more information and details of support groups on NHS.UK. And nothing prepares you at all. 'Yes, if that's okay with you,' kind of thing, like you do. I had no issues at my 20wk scan with DD - and neither did any of my antenatal group (9 mums). So I no longer trusted my instincts. Good luck has not come easily over the past few years. And I can just remember flashing a look at you as if to say, 'Have I made a mistake here somewhere? Your mind has closed to the possibility that there could be anything wrong. The thing that I have a very strong memory of is this child's face in amazing detail.

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